Interstitial Cystitis Support
Some people find it challenging to deal with the emotional and practical aspects of interstitial cystitis. A support group can offer advice for patients and family members on financial issues, work-related issues, and other aspects of living with the disorder. Potential sources of interstitial cystitis support include healthcare providers and counselors (such as social workers and clergy members).
Living with interstitial cystitis is not always easy. Some people find that they need help coping with the emotional and practical aspects of their disease. Studies have found that patients who learn about their condition and become involved in their own healthcare tend to do better than patients who do not.
In interstitial cystitis support groups, patients or their family members get together to share what they have learned about coping with the disease and the effects of interstitial cystitis treatment. Patients may want to talk with a member of their healthcare team about finding a support group in their area. These groups may offer support in person, over the telephone, or on the Internet.
People with interstitial cystitis may worry about caring for their families, keeping their jobs, or continuing daily activities. Concerns about treatment methods and managing side effects are also common. Doctors, nurses, and other members of your healthcare team can answer any questions about treatment, working, or other activities.
Meeting with a social worker, counselor, or member of the clergy can be helpful for those who want to talk about their feelings or discuss their concerns. Often, a social worker can suggest resources for financial aid, transportation, home care, or emotional support.